HUBUNGAN BEBAN DAN KEBUTUHAN FAMILY CAREGIVER DALAM MERAWAT ANGGOTA KELUARGA DENGAN STROK
Abstract
Manajemen strok yang kompleks dan jangka panjang membuat keluarga sering kali menghadapi beban perawatan. Beban tersebut berkaitan dengan kemampuan keluarga dalam memenuhi kebutuhan perawatan pasien strok. Tujuan: Mengetahui hubungan beban dan kebutuhan family caregiver yang merawat anggota keluarga dengan strok di wilayah kerja Puskesmas Babakan Sari, Kota Bandung. Metode: Penelitian ini merupakan penelitian kuantitatif dengan pendekatan cross-sectional. Teknik pengambilan sampel menggunakan purposive sampling dan diperoleh 80 family caregiver. ZBI-22 dan FNQ digunakan dalam penelitian ini. Data dianalisis dengan uji korelasi Spearman rank. Hasil: Sebanyak 40% merasakan beban ringan, 22,50% beban sedang, dan 2,50% beban berat. Secara umum, kebutuhan dengan tingkat keterpenuhan tertinggi didominasi oleh kebutuhan yang bersifat teknis dan berhubungan dengan perawatan sehari-sehari. Sebaliknya, kebutuhan dengan tingkat keterpenuhan yang rendah terdapat pada domain kebutuhan dukungan emosional dan profesional kesehatan, khususnya pada item kebutuhan mempelajari luka (36,36%) dan dukungan profesional untuk mengekspresikan perasaan (36,25%). Terdapat hubungan yang signifikan antara beban perawatan dan kebutuhan family caregiver dengan arah korelasi negatif (p-value < 0,001; r = –0,435). Diskusi: Semakin baik keterpenuhan kebutuhan family caregiver mencerminkan semakin rendah beban perawatan yang dirasakan. Kesimpulan: 1 dari 4 family caregiver merasakan beban sedang hingga berat serta kebutuhan pada aspek dukungan eksternal dinilai belum terpenuhi secara optimal. Penguatan dukungan profesional diperlukan bagi family caregiver guna mempertahankan kualitas perawatan dan mencegah dampak negatif proses perawatan yang panjang. Perlu dilakukan penelitian lebih lanjut mengenai faktor yang berhubungan dengan beban dan keterpenuhan kebutuhan perawatan.
Kata Kunci: beban perawatan, family caregiver, kebutuhan keluarga, strok.
Correlation Between Caregiver Burden and Family Caregiver Needs in Caring for Family Members with Stroke
ABSTRACT
The complex and long-term management of stroke often subjects families to significant caregiving burdens. This burden is directly related to the family's capacity to meet the caregiving needs of stroke patients. Objective: To identify the correlation between caregiver burden and the needs of family caregivers caring for family members with stroke in the Babakan Sari Community Health Center (Puskesmas) working area, Bandung City. Methods: This was a quantitative study utilizing a cross-sectional approach. Samples were selected using a purposive sampling technique, yielding 80 family caregivers. The Zarit Burden Interview (ZBI-22) and the Family Needs Questionnaire (FNQ) were employed as research instruments. Data were analyzed using the Spearman-Rank correlation test. Results: The findings showed that 40% of respondents experienced mild burden, 22.50% moderate burden, and 2.50% severe burden. In general, the needs with the highest level of fulfillment were dominated by technical and daily care-related needs. Conversely, the lowest fulfillment levels were found within the emotional support and healthcare professional domains, specifically regarding the need to learn about wound care (36.36%) and professional support for expressing emotions (36.25%). A significant negative correlation was found between caregiver burden and family caregiver needs (p-value < 0.001; r = -0.435). Discussion: Better fulfillment of family caregiver needs reflects a lower perceived caregiving burden. Conclusion: One in four family caregivers experiences moderate-to-severe burden, and needs regarding external support are not yet optimally fulfilled. Strengthening professional support is essential for family caregivers to maintain the quality of care and prevent the adverse effects of prolonged caregiving. Further research is warranted to investigate other factors associated with caregiver burden and the fulfillment of caregiving needs.
Keywords: caregiver burden, family caregiver, family needs, stroke.
Full Text:
PDFReferences
Adiputra, I.M.S., Trisnadewi, N.W., Oktaviani, N.P.W., Munthe, S.A., Hulu, V.T., Budiastutik, I., ..., & Suryana. (2021). Metodologi Penelitian Kesehatan. Yayasan Kita Menulis.
Alnaeem, M.M., Al Qadire, M., & Nashwan, A. J. (2025). Unmet needs, burden, and quality of life among family caregivers of patients with advanced hematological malignancy. Psychology, Health & Medicine, 30(7), 1573–1588. https://doi.org/10.1080/13548506.2025.2482954.
Apriliyanti, I.R., Martini, S., Rahman, M.A., & Rosa, R.D. Dela. (2024). Primary family caregiver psychological stress of stroke survivors at RSUD dr. H. Slamet Martodirjdjo Pamekasan. Periodic Epidemiology Journal/Jurnal Berkala Epidemiologi, 12(2), 107–115. https://doi.org/10.20473/jbe.v12i22024.107-115.
Bertola, L., da Mata, F.A.F., Ramos, A.A., Godoy, C., Júnior, H.A. de O., & Ferri, C.P. (2024). More than burden: the relationship between caregivers and people with dementia unmet needs. Alzheimer’s & Dementia, 20(4), e089211. https://doi.org/10.1002/alz.089211
Bressan, V., Visintini, C., & Palese, A. (2020). What do family caregivers of people with dementia need? A mixed-method systematic review. Health & Social Care in the Community, 28(6), 1942–1960. https://doi.org/https://doi.org/10.1111/hsc.13048.
Corallo, F., Pria, D., Di Blasi, A., Bonanno, L., De Cola, M.C., Di Cara, M., ..., & Buono, V. Lo. (2021). The effects of caregiver’s burden on dynamic structure in disorder of consciousness families: An observational study. Brain and Behavior, 11(8), e2305. https://doi.org/10.1002/brb3.2305.
Costa-Requena, G., Val, M.E., & Cristòfol, R. (2015). Caregiver burden in end-of-life care: advanced cancer and final stage of dementia. Palliative & Supportive Care, 13(3), 583–589. https://doi.org/doi:10. 1017/S1478951513001259.
Dinas Kesehatan Kota Bandung. (2024). Profil kesehatan Kota Bandung tahun 2024. Pemerintah Kota Bandung. Retrieved from https://dinkes.bandung.go.id/wp-content/uploads/2025/07/Profil-2024.pdf.
Elsheikh, M.A., Moriyama, M., Rahman, M. M., Kako, M., El-Monshed, A.H., Zoromba, M., ...., & Amr, M. (2022). Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: a randomised controlled trial. BMJ Open, 12(2), e049741. https://doi.org /10.1136/bmjopen-2021-049741.
Espuela, F., González-Gil, T., Amarilla-Donoso, J., Cordovilla-Guardia, S., Portilla-Cuenca, J.C., & Casado-Naranjo, I. (2018). Critical points in the experience of spouse caregivers of patients who have suffered a stroke: A phenomenological interpretive study. PloS One, 13(4), e0195190. https://doi.org/10.1371/journal.pone.0195190.
Farahani, M.A., Bahloli, S., Jamshidi Orak, R., & Ghaffari, F. (2020). Investigating the needs of family caregivers of older stroke patients: A longitudinal study in Iran. BMC Geriatrics, 20(1), 313. https://doi.org/10.1186/s12877-020-01670-0.
Gorostiaga, A., Etxeberria, I., Salaberria, K., & Kortabitarte, I. (2022). Primary and secondary caregivers of people with dementia (PwD): Differential patterns and implications for psychological support. Healthcare, 10(6), 1102. https://doi.org/10.3390/healthcare10061102.
Hailu, G.N., Abdelkader, M., Meles, H.A., & Teklu, T. (2024). Understanding the support needs and challenges faced by family caregivers in the care of their older adults at home: A qualitative study. Clinical Interventions in Aging, 19(1), 481–490. https://doi.org/10.2147/CIA.S451833.
Hamedani, B., Alavi, M., Taleghani, F., & Fereidoonimoghadam, M. (2022). Challenges of help-seeking in Iranian family caregivers of patients with Cancer: a qualitative study. International Journal of Cancer Management, 15(5), e127060. https://doi.org/https://doi.org/10.5812/ijcm-127060.
Haroen, H., Juniarti, N., Sari, C. W. M., Prista Sari, S., Arovah, N.I., Pardos i, J.F., & Wibowo, D.A. (2025). Factors associated with caregiver burden in families of patients with palliative and chronic illness: A cross-sectional study. Journal of Multidisciplinary Healthcare, 18(1), 4497–4510. https://doi.org/10.2147/ JMDH.S533067.
Hirayama, K., Kuribara, T., & Oshikiri, M. (2023). Experiences of the older spousal caregivers of patients with cancer during palliative chemotherapy: A qualitative descriptive study. BMC Palliative Care, 22(1), 188. https://doi.org/10.1186/s12904-023-01313-2.
Hof, K. Van, Hoesseini, A., Dorr, M. C., Verdonck-de Leeuw, I. M., Jansen,F., Leemans, …, & Offerman, M.P.J. (2022). Caregiver burden, psychological distress and quality of life among informal caregivers of patients with head and neck cancer: A longitudinal study. International Journal of Environmental Research and Public Health, 19(23), 16304. https://doi.org/10.3390/ijerph192316304.
Jaracz, K., Grabowska-Fudala, B., Jaracz, J., Moczko, J., Kleka, P., Pawlicka, A., & Górna, K. (2024). Caregiver burden after stroke: a 10-year follow-up study of Polish caregivers for stroke patients. BMC Nursing, 23(1), 589. https://doi.org/10.1186/s12912-024-02251-x.
Joshi, K., John, A.J., Ramamurthy, R., & Mehta, N. (2020). Disability and its relationship with caregiver burden among stroke survivors: A cross-sectional study. Indian Journal of Physiotherapy and Occupational Therapy an International Journal, 13(2), 87–90. https://doi.org/10.37506/ijpot.v14i2.2616
Kementerian Kesehatan Republik Indonesia. (2023). Survey Kesehatan Indonesia (SKI). Retrieved from https://www.badankebijakan.kemkes.go.id/hasil-ski-2023/.
Kobayashi, R., Maruyama, S., Hirose, T., Ishikawa, H., & Kobayashi, N. (2024). A scoping review of prognosis prediction studies focusing on activity and participation among patients with stroke in Japan. Asian Journal of Occupational Therapy, 20(1), 29–48. https://doi.org/10.11596/asiajot.20.29.
Serio, C. D., Kreutzer, J. S., & Witol, A. D. (1997). Family needs after traumatic brain injury: A factor analytic study of the family needs questionnaire. Brain Injury, 11(1), 1–9. https://doi.org/10.1080/026990597123764
Kumar, A., Yadav, A. K., Singh, V. K., Pathak, A., Chaurasia, R. N., Mishra, V. N., & Joshi, D. (2022). Caregiver burden in caregivers of stroke survivors: A hospital-based study. Annals of Indian Academy of Neurology, 25(6), 1092–1098. https://doi.org/10.4103/
aian.aian_318_22.
Larantukan, A.M.F. & Yudiarso, A. (2025). Validitas alat ukur Zarit Burden Interview (ZBI) menggunakan model Rasch pada populasi Indonesia. Humanitas (Jurnal Psikologi), 9(1), 18–40. https://doi.org/https://doi.org/10.28932/humanitas.v9i1.11007
Lee, J.-W., Sohn, M., Lee, J., Kim, D. Y., Shin, Y.-I., Oh, G.-J., …, & Chang, W. (2024). Predictors of burden for first-ever stroke survivor’s long-term caregivers: A study of KOSCO. Medicina, 60(4), 559. https://doi.org/10.3390/medicina60040559
Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438–445. https://doi.org/10.1016/j.ijnss.2020.07.012
Melinda, P., Suhari, S., Hartono, D., & Alfarizi, M. (2023). Peran informal perawatan keluarga terhadap pencegahan serangan stroke pada pasien pasca stroke. Jurnal Kesehatan Poltekkes Kemenkes RI Pangkal Pinang, 11(2), 149–156. https://doi.org/https://doi.org/10.32922/jkp.v11i2.805
Pahria, T., Sari, C.M.W., & Lisnawati, L. (2019). Hubungan beban dengan depresi keluarga yang merawat pasien stroke di Rumah Sakit Al-Islam Bandung. Jurnal Pendidikan Keperawatan Indonesia, 5(2), 157–166. https://doi.org/10.17509/jpki.v5i2.19821
Park, M., Choi, S., Lee, S.J., Kim, S.H., Kim, J., Go, Y., & Lee, D.Y. (2018). The roles of unmet needs and formal support in the caregiving satisfaction and caregiving burden of family caregivers for persons with dementia. International Psychogeriatrics, 30(4), 557–567. https://doi.org/10.1017/S104161021 700196X
Purba, C.I.H., Johnston, B., & Kotronoulas, G. (2023). An exploration of family caregivers’ health care needs when caring for patients with cancer in the resource-challenged context of west java, Indonesia. Seminars in Oncology Nursing, 39(3), 151369. https://doi.org/10.1016/j.soncn.2022.151369
Ramli, S.F. & Pardi, K.W. (2018). Factors associated with caregiver burden of family with a cancer patient undergoing chemotherapy at a tertiary hospital, Malaysia. International Medical Journal, 25(2), 99–102.
Riany, Y.E., Meredith, P., & Cuskelly, M. (2017). Understanding the influence of traditional cultural values on indonesian parenting. Marriage & Family Review, 53(3), 207–226. https://doi.org/10.1080/01494929.2016.1157561
Risnarita, D., Pribadi, T., Furqoni, P.D., & Elliya, R. (2022). Depresi, kecemasan, stress dan beban perawatan pengasuh utama (caregiver) pasien dengan stroke. Jurnal Malahayati, 6(7), 625–635. https://doi.org/10.33024/hjk.v16i7.8843
Rohmah, A.I.N. & Rifayuna, D. (2021). Kebutuhan family caregiver pada pasien stroke. Jurnal Keperawatan Jiwa, 9(1), 143–152. https://doi.org/10.26714/jkj.9.1.2021.143-152
Ryś, B. & Bąk, E. (2025). Factors determining the burden of a caregiver providing care to a post-stroke patient. Journal of Clinical Medicine, 14(9), 3008. https://doi.org/10.3390/jcm14093008
Sakwape, K., Kovane, G. P., Chukwuere, P. C., Moagi, M., & Machailo, R. (2025). The needs of family members caring for people living with mental illness: An integrated review. Health SA
Gesondheid, 30, 2901. https://doi. org/10.4102/hsag. v30i0. 2901
So, J. & Park, M.-H. (2024). Family’s caregiving status and post-stroke functional recovery during subacute period from discharge to home: A retrospective study. Journal of Clinical Medicine, 13(22), 6923. https://doi.org/10.3390/jcm13226923
Tsai, P.-C., Yip, P.-K., Tai, J.J., & Lou, M.-F. (2015). Needs of family caregivers of stroke patients: A longitudinal study of caregivers’ perspectives. Patient Preference and Adherence, 9, 449–457. https://doi.org/10.2147/PPA.S77713
Muthucumarana, M., Samarasinghe, K., & Elgán, C. (2018). Caring for stroke survivors: experiences of family caregivers in Sri Lanka–A qualitative study. Topics in Stroke Rehabilitation, 25(6), 397–402. https://doi.org/https://doi.org/10.1080/10749357.2018.1481353
Rahman, W.M.A. & Mazlan, M. (2024). The prevalence of depression and its correlates among informal caregivers of stroke patients in an urban community. Cureus, 16(1), e51486. https://doi.org/10.7759/cureus.51486
World Stroke Organization. (2022). A life free from stroke: World stroke organization’s global policy agenda. https://www.world-stroke.org/assets/downloads/WSO_Global_Stroke_Fact_Sheet.pdf
Zarit, S.H., Reever, K.E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. https://doi.org/10.1093/geront/20.6.649
Zarit, S.H. & Zarit, J.M. (1982). Families under stress: Interventions for caregivers of senile dementia patients. Psychotherapy: Theory, Research, and Practice, 19(4), 461–471. https://doi.org/10.1037/h0088459
Zawawi, N.S.M., Abd Aziz, N.A., Fisher, R., Ahmad, K., Omar, M.A., Walker, M.F., & Walker, M. (2023). The unmet needs of caregiving skills, support, emotions, and finances of stroke caregivers: A Multicenter study. Cureus, 15(8), e44346. https://doi.org/10.7759/cureus.44346
DOI: http://dx.doi.org/10.32419/jppni.v11i1.834
Article Metrics
Abstract view : 0 timesPDF - 0 times
Refbacks
- There are currently no refbacks.
Jurnal PPNI (P-ISSN: 2503-1376 ; E-ISSN: 2549-8576)
Published by PPNI
Jurnal Persatuan Perawat Nasional Indonesia (JPPNI)









